By joining the Mount Sinai Million Health Discoveries Program, you will be able to contribute to our understanding of how genes influence our health. With your help, we can move medicine forward and work to discover how to prevent and treat diseases in the future!
The Mount Sinai Million Health Discoveries Program aims to enroll one million Mount Sinai patients to better understand how genes influence our health. By looking at a large and diverse group of patients, we will be able to understand how to treat different diseases in patients of all races, ages, and genders.
All data collected will be stored securely to ensure your privacy is protected. We will not release any information that directly identifies you. Instead, we will use a code that links your samples and information with who you are and we will not release that code.
Participating in the study doesn't take much time at all! The time required to participate will be limited to the time needed to review and sign this consent form and answer 3 questions. If you agree to be contacted in the future for surveys, it may take about 10 minutes each time. If you choose to give a research sample, the time required to participate will be the time it takes to draw a tube of blood.
Research done may benefit the public by increasing the knowledge on the nature and treatment of different diseases but there are no direct benefits to most participants in the study. Participants who receive medically actionable genetic results may benefit by learning about the increased risks for the associated genetic condition and they will be informed that their family members may be at an increased risk for the same genetic condition.
We are not planning on sharing your individual results back to you, your treating doctor, or anyone else. These results will never go into your medical record. However, if experts from the study team decide that the genetic results from your sample are of medical importance, we will attempt to contact you to ask if you would like to proceed to obtain the genetic result. In some situations, follow up testing might be needed in a certified clinical lab.
You may stop taking part in this research study at any time without any penalty. This will not affect your ability to receive medical care within the Mount Sinai Health System or to receive any benefits to which you are otherwise entitled. If you decide to stop being in the research study, please contact the Principal Investigator or the research staff.
We do not anticipate any significant physical, psychological, or social risks to study participants. The main risks to you if you choose to participate are the loss of the confidentiality of your samples or information and not being able to decide which future research projects will use your samples.